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I have a similar problem that was diagnosed as Vasovagel Syncope but was actually an odd loop of my artery that runs near the atlas or the top vertebrae of the spine. It is looped backwards and if I look up and raise my arms the blood supply gets
I have a similar problem that was diagnosed as Vasovagel Syncope but was actually an odd loop of my artery that runs near the atlas or the top vertebrae of the spine. It is looped backwards and if I look up and raise my arms the blood supply gets pinched off and the world goes black. I wake up with a killer headache and nausea.
When my Dr. heard what I had previously been diagnosed with she was skeptical and took an scan thinking I might have something more serious. She basically said there's really nothing that can be done except for me not to look up and raise my arms (like when you change a lightbulb in a ceiling fan). If they did surgery to move the artery it could loop or cause more damage so it's best left alone. I then found out that this weird abnormality runs in my family.
Exactly! That is what is wrong with me too, but it effects the way I live. I am not allowed to drive or try to work. I am a "liability" apparently. It makes sense.. I can't be driving and passing out. That is dangerous. I can't be working in a kitchen (my profession is baking and pastry) and hurting myself or others. I applied for SSDI and they are finally contacting me, saying that I have a legitimate illness. I thought I had to live with it forever, honestly.
I had scans done, I've been to every doctor and had SO many tests done. MRI, MRA, CAT Scans, Heart Monitor, EEG, EKG, blood work, x-rays of my whole body, ect ect ect and they said my Vasovagel nerve is just really sensitive and the artery is in the wrong place which presses up against things in my body and makes me pass out at random times, usually from stress, heat, standing too long, or no reason at all. It just happens. They told me that it could possibly be from birth and it just appeared now, but it would have eventually. (I almost died when I was born because my Mother was.. on a lot of stuff.) They can't do a damn thing about it or it could severely damage other things in my body or make me paralyzed. Surgery for this type of thing is really out of the question. Even though Medicine has gone so far, it hasn't gone far enough for this one.
It is interesting to hear someone else having this too. It isn't very common. I've talked to new doctors and therapists in the new town/state that I live in, and they don't even know what a Vagus nerve is. It is really incredible to me. It really is a weird abnormality.
I'm really glad that you can live normally with it. It gives me hope.