Hey everyone! Herpes convo? Anyone who is willing to talk.

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Hey everyone! Herpes convo? Anyone who is willing to talk.

ToyGurl ToyGurl
As most of you know, I work at a women's health center. You'd think I would know all about what vaginal herpes feels like, and what it is like dealing with it, but I don't. I only know the facts that are in the book.

I have to do a class on Thursday with some teens who have just recently been tested for herpes, and have shown up positive without symptoms. I have to prepare them for what they will feel, what to watch out for, etc. Can anyone give me their stories?

Here are the main things I would like to know if you are willing. You are welcome to privately message me if discussions bother you.

1. How did you know when you first had herpes?

2. What does herpes feel like for you? Both before you start to blister, during, and after?

3. What treatment option have you settled on?

4. Do you have a partner? Do they have herpes as well? How do they feel about you having herpes?

5. How long have you had herpes? How did you feel emotionally when you first found out?

6. How do you feel now that you have been dealing with herpes for some time?

Thanks for all the info. Feel free to add anything in if you wish.
05/24/2011
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ToyGurl ToyGurl
P.S. - They are FEMALE teens, not males.
05/25/2011
Jul!a Jul!a
I don't personally have anything that could help you, but I do want to bump the thread back up just in case somebody else does. There are probably some forums out there somewhere too where people have talked about it and if you can't get any stories here, you might be able to at least find something to go in with.
05/25/2011
ToyGurl ToyGurl
Quote:
Originally posted by Jul!a
I don't personally have anything that could help you, but I do want to bump the thread back up just in case somebody else does. There are probably some forums out there somewhere too where people have talked about it and if you can't get any ...
I got a couple messages I looked up some online but a lot of people were just bashing them instead of answering truthfully. I've never had to deal directly with an emotional support group for teens. We do things like "What does a normal body look like" for those who have self-image issues. Or meetings about getting STD tests, check-ups, etc. I can't personally say what having an STD feels like other than the textbook symptoms. But those aren't always 100%. Thank you for the help
05/25/2011
Possibly Normal Possibly Normal
Quote:
Originally posted by ToyGurl
As most of you know, I work at a women's health center. You'd think I would know all about what vaginal herpes feels like, and what it is like dealing with it, but I don't. I only know the facts that are in the book.

I have to do a ...
I know this is not exactly what you are looking for, but since you haven't been getting a serious response I will help out as much as I can.

I do not have vaginal herpes. I do however have a genetic type and it affects my ears. I know it is EXTREMELY weird!

My first outbreak was during my freshman year in college, exams of course. I had no idea what it was. My left ear swelled and got all blistery. It hurt like the dickens. I would ice it and finally after a few days of ice and neosporine it went away.

When an out break starts my ear(s) get warm, they turn pink then red then brown like a really nice tan. Then the skin get kind of hard and crunchy, then it blisters. Clear fluid comes out of the blisters and then it hardens over. I know I shouldn't but lancing those suckers really helps the pain.

I finally went to a doctor a few years ago while I had an out break. He gave me the RX for genital herpes. It didn't clear it up any faster but I was out break free for about 5 years. (I just had 2 out breaks this summer and winter, both stress related, hurray divorce)

I have been told that my virus is genetic and it is not contagious. Also no one who has come in contact with one of my outbreaks has ever contracted it.

I have had it I guess all my life, but I found out in 2002. In 2008 I was told what it was. I was FREAKED out! I had so many questions for my poor doctor. I am just glad I wasn't to ashamed to ask every single question and he took time to answer every one of them.

It is still strange to talk about it, but since mine is so visible sometimes I have to.



Like I said I know it isn't what you are looking for exactly but hope it helps.
05/25/2011
Tidwtrguy Tidwtrguy
Quote:
Originally posted by ToyGurl
As most of you know, I work at a women's health center. You'd think I would know all about what vaginal herpes feels like, and what it is like dealing with it, but I don't. I only know the facts that are in the book.

I have to do a ...
If they are positive without symptoms, did the blood test confirm it was HSV-2 (genital herpes)? Depending on the type of test and the result, it may not be certain whether it is genital or oral herpes. Some people have tested positive for herpes and have never had noticeable outbreaks and others may have had one outbreak and then none for years, even without medication. I'm not in the medical field but from what I've read there are many doctors that don't even test for herpes during routine STD screening (unless there is concern to do so).

Cold sores are often caused by HSV-1, a herpes virus, but people don't run around saying they have herpes on their lip...they say they have a cold sore. Any STD is no fun but with education instead of fear and ignorance, people can continue happy, healthy sex lives.
05/25/2011
ToyGurl ToyGurl
Quote:
Originally posted by Possibly Normal
I know this is not exactly what you are looking for, but since you haven't been getting a serious response I will help out as much as I can.

I do not have vaginal herpes. I do however have a genetic type and it affects my ears. I know it ...
Actually thank you fro that story. Anything will really help. I got a few private messages from other people but they weren't as detailed. Most of it was emotional support issues/advice.

I'm glad that you were outbreak free for so long. that must have felt like a miracle.

Thank you!!!
05/25/2011
ToyGurl ToyGurl
Quote:
Originally posted by Tidwtrguy
If they are positive without symptoms, did the blood test confirm it was HSV-2 (genital herpes)? Depending on the type of test and the result, it may not be certain whether it is genital or oral herpes. Some people have tested positive for herpes ...
Thanks I actually work at the women's hospital, and planned parenthood. I know that much about herpes, but thanks anyway. I just decided to become an assistant counselor type person and I offered to host their first meeting. It's more of a "what to expect" type meeting for kids who are confused and really don't know what the hell they are in for.

It really is a scary thing. I have a lot planned for tomorrow, and I even typed up emotional support pamphlets for their families. I hope it goes well.
05/25/2011
Possibly Normal Possibly Normal
Good luck and let us know how it goes.
05/26/2011
AngelvMaynard AngelvMaynard
I am just seeing this post, and it may be too late to answer, but I have a friend (it really is a friend and not me, I tell all like a running faucet) but she is pretty open about having it and I can ask her some specific questions if you need.
07/07/2011
Ms. Spice Ms. Spice
i think it might be too late to respond to this, but it's always nice to post something someone else might see.

i had a nasty outbreak and was told it was probably a skin infection, but turned up positive for herpes simplex 1 (it started off with me feeling like i had a UTI, then i had painful blisters- it was horrible.)

i found that when i was about to have an outbreak (you know, scratchy throat, insanely itchy clit, i take echinacea and when a sore shows up, i apply vitamin e twice a day for a whole day and the sore(s) disappear completely.

i take a shit ton of vitamins and my anti viral. it's worked pretty well. i don't have a partner, so i can't give you that kind of info unfortunately.

i found out i had it just like a month ago. i was pretty depressed about it, but after a lot of introspection, i know that i'm the same person, i just need to be more careful and i need to take care of myself better.

i hate that i have it, but i feel blessed that it's not as bad as i first thought it was going to be. i think the thing that makes it hard is the social stigma attached to it; i can live with it, but i do want a partner that will love me regardless of the fact that i have it.
09/05/2011
Total posts: 11
Unique posters: 6