PCOS

Kimmie1980ca Kimmie1980ca
How many of you out there have PCOS (Polycystic Ovarian Syndrome)? How are you managing?
08/19/2010
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Hannah Savage Hannah Savage
Quote:
Originally posted by Kimmie1980ca
How many of you out there have PCOS (Polycystic Ovarian Syndrome)? How are you managing?
I do not personally have PCOS, but I have a good friend that has it. She has had to undergo a lot of treatments and surgeries, but things are getting better for her.
08/20/2010
PassionQT PassionQT
I had a cyst on my ovary, just had surgery last week to clean up some endometriosis too. But I haven't been diagnosed with it. I still have to wait for my follow-up with my Dr. to talk about his findings.
08/20/2010
Coralbell Coralbell
I think I have it, but I haven't been diagnosed. I told my doctor my symptoms and she prescribed me Diane 35 to regulate my cycle and help with my acne but she never diagnosed me with anything, just said that I have too much testosterone.
08/20/2010
Annemarie Annemarie
I'm fairly sure I have it, but it hasn't been actually diagnosed. I've had irregular periods for my entire life, and I was on birth control for parts, and that helped.
08/20/2010
Red Vinyl Kitty Red Vinyl Kitty
I have it, and I cannot be on birth control pills. My doctor is trying to control the cysts using a medication that is not related to cysts or birth control because it occasionally helps people with PCOS. Ugh. >.<


Honestly, I think I am pretty lucky though. I am not overweight, I don't have acne, I don't have extra hair. The way it affects me is that I have cysts which seem to grow too much, and then they rupture. Rupturing HURTS. I will be out of commission for a week if that happens, but in the year and a half since I have been diagnosed, I have only had a cyst rupture three times. Yeah, I know, that is a lot, but still. It could be worse.
08/20/2010
Darling Jen Darling Jen
Quote:
Originally posted by Red Vinyl Kitty
I have it, and I cannot be on birth control pills. My doctor is trying to control the cysts using a medication that is not related to cysts or birth control because it occasionally helps people with PCOS. Ugh. >.<


Honestly, I ... More
I also have PCOS but can't use birth control as a form of treatment. Been there, done that, was in the E.R. because I nearly had a stroke. I'm on other medication to try and help my body out but I've found it's not doing much good so another doctor visit is in my near future.

My biggest suggestion to anyone who thinks they might have PCOS or was recently diagnosed - do your research! Don't just let one doctor be the source of all your information. And knowledge is power and only YOU know your body.
08/20/2010
hnybrwngrl hnybrwngrl
Quote:
Originally posted by Kimmie1980ca
How many of you out there have PCOS (Polycystic Ovarian Syndrome)? How are you managing?
I have PCOS, it was managed with birth control pills and it turned into insulin resistance and that is managed with metformin that help me lose weight and the more weight i lose the better my pcos got
08/23/2010
Love Buzz Love Buzz
I was diagnosed with PCOS when I was 21, so far it hasn't caused me to much grief, I'm taking the pill which seems to be keeping things from worsening, but as I also suffer from endometriosis I find things can get really painful.

My mothers side of the family have a long history of PCOS & endo, I wonder how many others with PCOS also have sisters, mothers aunts etc who also have it ?
08/23/2010
VampKitty VampKitty
Both me and two of my sisters have PCOS. My one sister has it the worst, she will be struggling with it the rest of her life. My other sister just recently found out she has it.

Both of them just tough it out. Heating pads, pain meds(when a cyst bursts).

PCOS is actually a genetic diseases. In men it will only show as diabetes starting at a young age(between 20-30).

Mine is at least at the early stages that I can take birth control and it will more then likely fix the situation. but I'll be fighting it the rest of my life. I have to be careful with how much weight I gain, how stressed I let myself get, etc.

If any of you have any questions about PCOS I'm sure I can help you find an answer if I don't know the answer already. I have studied PCOS for about 6 years now. I wanted to know what to look for, and be prepared for if I were to start showing symptoms.
08/24/2010
VampKitty VampKitty
Quote:
Originally posted by Coralbell
I think I have it, but I haven't been diagnosed. I told my doctor my symptoms and she prescribed me Diane 35 to regulate my cycle and help with my acne but she never diagnosed me with anything, just said that I have too much testosterone.
Having more acne then is "normal" for you body is a sign of PCOS. High testosterone levels are a sign as well. But the only true way to tell is to get an ultrasound to see if you have testosterone around your ovaries OR to see if you have actual cysts on your ovaries.
08/24/2010
Coralbell Coralbell
Quote:
Originally posted by VampKitty
Having more acne then is "normal" for you body is a sign of PCOS. High testosterone levels are a sign as well. But the only true way to tell is to get an ultrasound to see if you have testosterone around your ovaries OR to see if you have ... More
I get sharp pains in my ovaries sometimes but my doctor didn't seem to be concerned about that at all. She just tested my hormone levels and glucose. I kind of want to see a specialist about it, but I doubt she would refer me.
08/24/2010
VampKitty VampKitty
Quote:
Originally posted by Coralbell
I get sharp pains in my ovaries sometimes but my doctor didn't seem to be concerned about that at all. She just tested my hormone levels and glucose. I kind of want to see a specialist about it, but I doubt she would refer me.
I would say you should either go to another doctor that you are able to go to without issues money wise or insist on a referral. This isn't a beat around the bush type of problem. If you do have it, it needs to be taken care of as soon as possible.
08/25/2010
Coralbell Coralbell
I'm Canadian so there's no issue with money, but I can't just make an appointment with an endocrinologst or whoever, I need a referral. I think I will ask about it again when I go for my follow up on the Diane 35. What do you mean when you say it needs to be taken care of as soon as possible? I thought PCOS is a lifelong thing you have to deal with the symptoms of, not something that would really need treatment right away or it could be dangerous.
08/25/2010
Blinker Blinker
Cherryblossom, are you a doctor or nurse or otherwise licensed medical professional? If not, I suggest you re-word your advice and not advertise yourself as an expert on the condition just because you and your family members have the disease.

I have PCOS and was diagnosed about 3 years ago. I won't go into my symptomolgy, but it can get bad. I've had several surgeries and am currently on Spironolactone and birth control to control cysts and androgen levels. Cramps used to completely debilitate me for days during my cycle, but NuvaRing has fixed that. My period is extremely light, if I even get one at all (I realize every woman's body is different, but this is how NuvaRing has helped me).
08/25/2010
VampKitty VampKitty
I'm sorry. I didn't mean for it to sound like I'm telling people they have to do anything. I was in a hurry and didn't really pay full attention to how I was wording it.

I just know from my doctor that it can be brought back to "normal" if maintained sooner rather then later.

The most common symptoms are the only ones that I listed. There are lists of other symptoms on websites.

Every woman is different and has different symptoms and different help aids.

Again I'm sorry if the way I worded something was to forceful.
08/26/2010
Avalee Avalee
I have PCOS it can be very difficult.
11/08/2010
Darling Jen Darling Jen
I had posted this in another thread about periods but didn't get any responses. So then I figured out it was because most the PCOS women couldn't so much comment on period stuff. But I'm so excited, I'll celebrate it again!

I have an amazing announcement for any and all women who have/understand PCOS! For the first time in SEVEN YEARS I am having my period without the medicinal influence of drugs to make it happen! I feel like I'm whole again! I stopped taking the meds the doctor prescribed me months ago because they failed to do anything and I couldn't afford financially to keep them, plus they gave me baaaad side effects. And 10 months since my last (artifial) period, I'm having a real menstruation! There are no words to express my joy. The best thing to happen to me in years and just in time to make me appreciate myself ever since my life was turned on its head.
11/08/2010
J's Alley J's Alley
Quote:
Originally posted by Darling Jen
I had posted this in another thread about periods but didn't get any responses. So then I figured out it was because most the PCOS women couldn't so much comment on period stuff. But I'm so excited, I'll celebrate it again!

I ... More
YAY!!!

I have PCOS, but I am allergic to Estrodile...nice huh? Totally explains the PCOS. My best friend was diagnosed 2 months before I was. I am amazed how drastically different our symptoms are.

A good GYN diagnosed her easily, but I had to go to an Endo to get help because I had NO outward symptoms.
11/08/2010
lexical lexical
I have it and I'm not doing anything about it, which I constantly feel nervous/apprehensive/g uilty about...I hope to have kids someday, but it is HARD to commit to changing your lifestyle to help the PCOS.

I haven't had a period in over a year. Not good...
11/08/2010
Darling Jen Darling Jen
Quote:
Originally posted by J's Alley
YAY!!!

I have PCOS, but I am allergic to Estrodile...nice huh? Totally explains the PCOS. My best friend was diagnosed 2 months before I was. I am amazed how drastically different our symptoms are.

A good GYN diagnosed her ... More
Yeah, that's what makes PCOS so difficult! The fact that it's an umbrella term for general female reproductive issues basically. Women can have such a huge range of symptoms and some barely have any at all! PCOS is a beast!
11/08/2010
Shellz31 Shellz31
I've never heard of this before... I'm in the dark.
What are the symptoms and how does it effect you? Certainly doesn't sound fun at all! But seems very common.
12/26/2010
Darling Jen Darling Jen
Quote:
Originally posted by Shellz31
I've never heard of this before... I'm in the dark.
What are the symptoms and how does it effect you? Certainly doesn't sound fun at all! But seems very common.
Unfortunately it is pretty common and since it's a women's issue and doesn't pose a death risk, the medical community hardly cares. Women are generally put on a back burner, which of course is just plain wrong.

But it's an umbrella term for general reproductive issues that are characterized by any (or all) of the following:

- Formation of cysts on the ovaries
- Higher levels of testosterone
- Absence of (or few) menstrual periods
- Absence of (or few) ovulation
- Difficulty (or impossibility) of becoming pregnant
- Increased skin problems
- Increase or appearance of facial hair
- Weight gain
- And, unfortunately, much more

It's really different for every woman what she experiences, how it started, and how it's treated. Some can 'beat' the syndrome and find their way out of it, others can't. I have to say that I'm currently showing signs of kicking PCOS ass though and had two periods in the span of half a year that weren't induced with medications which is VERY exciting for me! Plus I've lost weight so I'm on the right track.
12/26/2010
KnK KnK
I do not, but at least 2 close friends of mine have it and are on the pill for it.
12/26/2010
ImABarbieGirl ImABarbieGirl
Quote:
Originally posted by Kimmie1980ca
How many of you out there have PCOS (Polycystic Ovarian Syndrome)? How are you managing?
I have not been diagnosed with it, I have however had cysts in my ovaries. The last (and only time) that I had an ultrasound was when a cyst ruptured, there were 2 still there. but so far no rupture... Being on Depo helped the others from rupturing - or maybe they went away.. Not sure b/c I havent been checked again.. Really dont wanna be, it hurt the last time.
02/12/2011
Mistress M. Mistress M.
I was diagnosed with PCOS when I was 14. Or maybe I was 13.. I was really young. The experience was really shitty for me, because they couldn't even call me into the office to tell me. Instead they called my mom and told her, and then got me on the phone and pretty much said.. "Oh, your going on the pill, and you might never have kids."

So I've been on the pill since I was really young. They give me that and some pain relievers because of my awful cramps and that is about it. When I'm on the pill my periods are steady, and might be light or heavy.

When I'm off of it, I'll not have a period for three months or more, and being sexually active, scares the hell out of me!
02/12/2011
girl next door girl next door
I was diagnosed with PCOS when I was 16. I was horrified because I was told I was pre-diabetic and because I thought I would never have kids. But, I am coping very well with it now with the help of birth control. However, it took me a long time to be okay with it. But, I am from a family with a history of different ovarian problems. I also know a lot of people now who have it and have had children and lived happy lives. Birth control was a god send for me because I had the worst periods ever with horrible pain that kept me home from school in high school. But now I feel much better about it. If anyone needs to talk about it or anything let me know. I've been there and am more than willing to commiserate and help anyway I can
02/12/2011
BeautiFullFigured BeautiFullFigured
I've never been officially diagnosed with PCOS but I do display all the classic symptoms associated with it. A couple years ago I had to have a tube removed because of a large cyst and multiple smaller cysts, plus there was torsion and necrosis. It wasn't pretty and I was screaming bloody mary while being rushed to the ER. Since then I've had two healthcare professionals unofficially diagnose me and advise me to seek official diagnosing and treatment. I can't say I miss the the monthly visits, but I know it isn't wise to go for long periods (no pun intended) of time without menstruating. The only thing stopping me from getting diagnosed is proper health insurance.
02/13/2011
Total posts: 28
Unique posters: 20