I am sorry to say that I no longer have this because I had to have a hysterectomy 2years ago. I was in constant pain and my periods were close to three weeks long. I had the surgery three days after I found out I had it thats how bad mine was.

I have heard about this. Tristan Taormino, whose done a lot of great queer-sex related stuff went through this recently and shared her story here.

I have been able to manage my symptoms by taking continuous hormones. It has helped significantly. I remember very clearly, however, popping lortab after lortab in the beginning - and they never even touched the pain. I feel your pain, and I'm sorry you're suffering so much. If my hormones didn't help me, I'd still have to take a week or 2 out of my life every month just to remain curled up in the fetal position trying not to vomit.

Badass, I am so sorry this is happening to you!! I will never forget the years of agony that I went through. Please message me!!!!! I ended up having a full hysterectomy, including fallopian tubes, ovary and cervix 20 years ago when I was 22 due to the severity of my case. I had endometrial ropes, NOT fibroids that grew to my bowels, kidneys, intestines, diaphragn and other internal areas. Luckily for me I opted for the surgery since they discovered the ovarian cancer tumors at the lab afterwards.

How is your physician treating you now? What, if any, hormones and drugs are you taking? What are your pain triggers? How long and severe are your periods? Have you noticed anything that gives you a minute bit of relief?

Sorry to ask you 20 questions, but this helps immensely in letting you know what worked for me and what stage I was in at the time. I might be able to help, or at least I will take a stab at it. These are simple things I came up with on my own from reading, talking to some older ladies that went through it and by trial and error. Nothing medical or illegal, I promise!!LOL!!

PLEASE message me back!!

My wife has endo too. Right now, it's only occasional pain that comes and goes. Her ob-gyn also recommended a hysterectomy after we're done having kids - shortly after she turns 30.

When I had a myomectomy (fibroid removal surgery) last October, they also found some Endometriosis as well. In my case, since they were already there removing the fibroid, they also removed the Endometriosis that they could easily see.

After recovering from the surgery, my cramps were MUCH less and the bleeding was less as well.

I suspect that I have it because I have cramps that are excruciating. I also have chronic, unexplained fatigue which is another symptom of endometriosis. However, my GP won't test for it. I need to find a good gynecologist and find out once and for all if I have it or not.

I have heard that therapy can help with pain management. Not much of a suggestion, but I haven't seen it mentioned yet.
Hope you find a solution soon, I hear endo's no fun.

I'm sorry you are suffering. Looking for a doctor who knows endo and will treat it well is important. I had to change doctors after my laproscopic surgery, because although the pain was better, it was still somewhat there. My doctor seemed to think that ONLY a hysterectomy was the cure. I'm sorry, but I wasn't willing to give up my uterus so quickly and so young. He said, "Well, you're done having kids, aren't you?" and I said, "Maybe, but I don't want to close that door. You're done having kids, would you have your testes removed if you had a problem, or would you look for an alternative?" When he said, "Well that's different." I quit seeing him and went back to my old OBGYN who treated the pain properly. Soon I was pregnant again, (which of course would never have happened if I had let the other dude remove my organs) and had a beautiful baby girl. (Despite the fact that the other doctor said I "couldn't get pregnant ever again" after the procedure, because the damage was too bad.) After her birth, the pain was much better, I didn't have a period for more than a year after she was born (which is common with complete breastfeeding) and even though I still have some pain, it's much better.

I do think the laproscopic surgery helped, (as did the pregnancy and the additional year "Break" from cyclical bleeding while the first year of nursing was happening) but I had to basically beg for the more difficult laproscopic surgery. It's easier for doctors to take everything out than to do micorsurgery though three tiny holes in your abdomen. I went with what was harder for my doctor, but better and healthier for my body, mind, spirit and well being.

I hope you find a good doctor and a solution soon.

Hope you find a good solution too!

I actually just recently met a lady with this condition at a play party. She was in constant pain and had to take a bunch of pain pills to help dull it while there. I don't really have any other experience with it other than that so there really isn't much else for me to add here.

I have heard about it, and it has been suggested to me by health care providers that I may have it, but no tests were done or anything so it was really just a suggestion.

My sister has it but I'm not sure what she does for it. I'm sorry you are having this problem.