Fibromyalgia sufferers? Any relief?

Contributor: K101 K101
I know there's more than one person here who's talked about having fibromyalgia, so when my cousin told me her Dr. said it sounds like she has fibromyalgia, I went to searching on what would give her relief. I know fibromyalgia patients suffer extremely & I hate that. So I thought I'd ask you guys if you know of anything that helps with the pain? We were hoping to come across some kind of natural remedy, so I've been buried in my natural remedy books for hours now. Little luck so far.

Anybody know of something that's helpful for such extreme pain? Thanks in advance for any suggestions.
03/09/2013
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Contributor: GONE! GONE!
It's really, really individual. People use everything from meditation to Vicodin to homeopathic remedies (I met someone who swore by this!). She's probably going to have to try quite a few things before she finds one that works well.
Personally I like a little bit of that green natural remedy known as Mary Jane when I can get it...
03/10/2013
Contributor: Wicked Wahine Wicked Wahine
I agree with Gold Lion on the Mary Jane! Excellent for this & for MS pain. Basically good for any pain that cannot be alleviated by other methods, but I understand this may not be an option nor should it be of first resort. Just keep it in mind.

First, she needs a specialist in treating this, not a doctor who hasn't dealt with this many times before. (You don't want a doctor who's learning this as you do.) I think the Internet is your biggest asset as far as connecting with others who've been through this, but know that this is not a well understood disease & treatments are just based on trying things that have worked for others & seeing if it works for you, too. You can really help by encouraging her to keep trying new things, even if the others didn't help.

I found these links for you : link link link they also have comments after some of them which may be worth reading. I'd also check out forums on this for lots of people's advice on what helped them. I hope you get more responses on here, because I have seen several people who've mentioned having this.

And if you want to buy supplements, the ONLY ones I take or trust for myself are from : link if you want to know why I only trust these, ask me in a PM or email. Don't worry about price, they have sales & free shipping several times a year.

You're a wonderful cousin to research this for her, especially when she may not feel well enough to pursue it herself. I know that when you are in enough pain, you'll try anything to help. There are always things you can do besides taking a prescription pill, but that could help, as well, so please don't rule them out. I agree, though, that an integrated approach is usually best & it can't hurt to follow advice that's good for anyone, not just someone with Fibromyalgia, for example yoga, eating more healthily, sleeping better, etc. Good luck!
03/10/2013
Contributor: K101 K101
Quote:
Originally posted by GONE!
It's really, really individual. People use everything from meditation to Vicodin to homeopathic remedies (I met someone who swore by this!). She's probably going to have to try quite a few things before she finds one that works well. ... more
I don't blame you there. There's no way I could just deal with that kind of pain without doing something, anything about it. Thanks for the response.

You know what's strange? She finally took a trip to the ER today and they told her she had a virus, ignored the fibromyalgia talk! How weird. She says she feels so much pain that it can't be just a virus. It's starting to worry me.

Thank you all very much for your suggestions! I will tell her what you guys have suggested.

PS. We done some searching online since she couldn't find a specialist in our area, and ended up finding someone who focuses on fibromyalgia and other "similar" stuff, so hopefully she'll get an apt. there & get somewhere.

Wicked Wahine, you angel! Thank you so much for the links! I'm going to send them to her right away and read them myself too!
03/11/2013
Contributor: kandy anjel kandy anjel
Quote:
Originally posted by K101
I know there's more than one person here who's talked about having fibromyalgia, so when my cousin told me her Dr. said it sounds like she has fibromyalgia, I went to searching on what would give her relief. I know fibromyalgia patients ... more
my mom has it and the only thing that provides any relief (not much relief tho) is percocet but she suffers so badly that nothing helps
03/11/2013
Contributor: Wicked Wahine Wicked Wahine
You may be too young to remember when people, mainly women, were developing strange symptoms of exhaustion & physicians couldn't find a reason. The patients were told they were nuts, but eventually there were too many of them to ignore. Then they discovered the Epstein-Barr virus & eventually Chronic Fatigue Syndrome. This was in the early to mid 80's.

When the medical establishment is faced with something new, especially when most of the sufferers are women, and they can't find a reason for the problem, they tend to balk & then turn it around on the patient, telling them it's their fault or in their head. This is what happened with Fibromyalgia, back before it had a name. Unfortunately, it's the patients who, in desperation , have come up with many of the therapies.

The fall back position of the doctors is always change the way you eat, lose weight, sleep better, exercise more... well duh, that would help anyone. But until they start developing drug therapies, patients are stuck playing pin the tail on the donkey as far as trying to find which thing helps. They will start trying common drugs, then depending on whether or not there was any success, they move to others, hoping something sticks. When they don't understand the disease, they can only treat the symptoms.

The only thing you can do is keep trying & never take one doctors word as law. If you don't like what you're hearing, or it doesn't sound right, get another opinion. Unfortunately, they don't understand this disease & much of what they think they do is conjecture. All we know for sure is that patients are truly suffering & something must be done about it and it's medicine's damn job to help you, not blow you off! It's like they tell the children who suffer abuse, they should tell an adult & if that one doesn't help, tell another & so on, until they get the help they need. That's what I feel patients with Fibromyalgia need to do, until they find a doctor(s) who take them seriously & give them the help they need.
03/11/2013